We're Linda and Andy Johnson, from Cazenovia, New York. What began as a blog about a bike ride has become a story about our ride through life, trying to overcome a disease that has had a huge impact on us and on many of our friends.

Our journey began in 2007, when Kyle Bryant originated the idea of Ride Ataxia - riding his three-wheeled cycle from San Diego to the annual National Ataxia Foundation meeting in Memphis. It took two months to get there, and in the process he raised $40,000 to fund Ataxia research and he raised awareness of the disease like no one has before. Well he rode to the annual meeting again in 2008 and we joined him! We left from Sacramento and arrived in Las Vegas two weeks and 650 miles later.

You see Linda also has Friedreich's Ataxia. This inherited disease causes the nerves of the body to deteriorate. Linda (and Kyle) can still walk at this point, but it's getting much more difficult. In addition, speech gets slurred, finger dexterity suffers, and other serious complications can develop as time goes on.

The good thing is that research is more promising than ever! Several drugs are going through trials at this time, with other significant research taking place as you read this. There has never been a better time to contribute to this research! Let's cure this disease - for Linda, for the rest of the Ride Ataxia team, and for all of the others afflicted with this disease!

Enjoy our blog! Feel free to write to us any time. Check out the links in the right column below to read more about the disease and our adventures. And if nothing else, be sure to take the seven minutes to watch FARA's video - we couldn't say it better ourselves.

Saturday, March 8, 2008

The Bikes Shipped!

Linda writes:

It feels like Christmas! Remember when you were ten years old and the anticipation of the arriving Christmas day just kept building! That's how Andy and I are feeling! Each day brings us that much closer to ... not sure what word to put here!

Andy took the bikes apart and boxed them up Monday, Tuesday, and Wednesday nights. Not a small task to fit large wheeled items into boxes that would not be oversized per UPS standards ... and could be ?easily? put back together again in our hotel room in Sacramento! We also packed riding gear so if our luggage gets delayed, we would be able to ride in something other than travel clothes. The three boxes shipped Thursday, 3-day air. So another "block" checked!

1 comment:

  1. WOW is right. What a great feeling it must be..
    Looking forward to seeing you soon.
    Congratulations on reaching your goal.

    ReplyDelete