We're Linda and Andy Johnson, from Cazenovia, New York. We've recently embarked on an exciting journey. Last year Kyle Bryant originated the idea of
Ride Ataxia - riding his three-wheeled cycle from San Diego to the annual National Ataxia Foundation meeting in Memphis. It took two months to get there, and in the process he raised $40,000 to fund Ataxia research and he raised awareness of the disease like no one has before. Well he rode to the annual meeting again this year and
we joined him! For this trip, we left from Sacramento on March 15 and arrived in Las Vegas on March 27.
You see Linda also has Friedreich's Ataxia. This inherited disease causes the nerves of the body to deteriorate. Linda (and Kyle) can still walk at this point, but it's getting much more difficult. In addition, speech gets slurred, finger dexterity suffers, and other serious complications can develop as time goes on.
The good thing is that research is more promising than ever! Several drugs are going through trials at this time, with other significant research taking place as you read this. There has never been a better time to contribute to this research! Let's cure this disease - for Linda, for the rest of the Ride Ataxia team, and for all of the others afflicted with this disease! We met up with many of them again when we got to Las Vegas, where we heard the latest news from the researchers. Let's give them the funds they need to solve this problem once and for all!
Enjoy our blog! Feel free to
write to us any time. Check out the links in the right column below to read more about the disease or to find out more about the ride. And please... it's not too late to
Help Find the Cure!
5 comments:
Linda & Andy -
You guys are STUDS! Way to go! Hope the downhill (tomorrow?) is fun too! (and thanks for the showers!)
-Beth
Unbelievable! Excellent! You are all amazing!
Good thing it all down hill today Sunday - EASTER!) cause it looks like your up to late for me! ;)
We've been checking your progress every day, waiting anxiously to see you take on the hill....excellent job!!!!
Easter - Doesn't Tess look HOT in her ears? Yeah, you stayed up to late for me;)
Spinner
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