We're Linda and Andy Johnson, from Cazenovia, New York. What began as a blog about a bike ride has become a story about our ride through life, trying to overcome a disease that has had a huge impact on us and on many of our friends.

Our journey began in 2007, when Kyle Bryant originated the idea of Ride Ataxia - riding his three-wheeled cycle from San Diego to the annual National Ataxia Foundation meeting in Memphis. It took two months to get there, and in the process he raised $40,000 to fund Ataxia research and he raised awareness of the disease like no one has before. Well he rode to the annual meeting again in 2008 and we joined him! We left from Sacramento and arrived in Las Vegas two weeks and 650 miles later.

You see Linda also has Friedreich's Ataxia. This inherited disease causes the nerves of the body to deteriorate. Linda (and Kyle) can still walk at this point, but it's getting much more difficult. In addition, speech gets slurred, finger dexterity suffers, and other serious complications can develop as time goes on.

The good thing is that research is more promising than ever! Several drugs are going through trials at this time, with other significant research taking place as you read this. There has never been a better time to contribute to this research! Let's cure this disease - for Linda, for the rest of the Ride Ataxia team, and for all of the others afflicted with this disease!

Enjoy our blog! Feel free to write to us any time. Check out the links in the right column below to read more about the disease and our adventures. And if nothing else, be sure to take the seven minutes to watch FARA's video - we couldn't say it better ourselves.

Sunday, March 23, 2008

News Links

Andy writes:

This is a little late, but here is some great news coverage of the ride.

First, this is the WSYR Syracuse Channel 9 story that was done right before we left (it actually aired after we left and we haven't seen it). It's only a transcript/story, not the video:

http://www.9wsyr.com/content/family_healthcast/story.aspx?content_id=d91585b1-7496-4880-82cc-bf722ace057c

And here's a great story that was on News10 in Sacramento when we started the ride:

http://www.news10.net/video/player_news10.aspx?sid=39586&aid=53127

There have been a few other stories too, like the TV crew that was in Bakersfield, and another news crew that will interview us tomorrow here in Tehachapi. I'll add links if I find them.

5 comments:

  1. Linda & Andy -

    You guys are STUDS! Way to go! Hope the downhill (tomorrow?) is fun too! (and thanks for the showers!)

    -Beth

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  2. Unbelievable! Excellent! You are all amazing!

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  3. Good thing it all down hill today Sunday - EASTER!) cause it looks like your up to late for me! ;)

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  4. Dana, Rhonda & TeddyMarch 23, 2008 at 1:52 PM

    We've been checking your progress every day, waiting anxiously to see you take on the hill....excellent job!!!!

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  5. Easter - Doesn't Tess look HOT in her ears? Yeah, you stayed up to late for me;)
    Spinner

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