We're Linda and Andy Johnson, from Cazenovia, New York. What began as a blog about a bike ride has become a story about our ride through life, trying to overcome a disease that has had a huge impact on us and on many of our friends.

Our journey began in 2007, when Kyle Bryant originated the idea of Ride Ataxia - riding his three-wheeled cycle from San Diego to the annual National Ataxia Foundation meeting in Memphis. It took two months to get there, and in the process he raised $40,000 to fund Ataxia research and he raised awareness of the disease like no one has before. Well he rode to the annual meeting again in 2008 and we joined him! We left from Sacramento and arrived in Las Vegas two weeks and 650 miles later.

You see Linda also has Friedreich's Ataxia. This inherited disease causes the nerves of the body to deteriorate. Linda (and Kyle) can still walk at this point, but it's getting much more difficult. In addition, speech gets slurred, finger dexterity suffers, and other serious complications can develop as time goes on.

The good thing is that research is more promising than ever! Several drugs are going through trials at this time, with other significant research taking place as you read this. There has never been a better time to contribute to this research! Let's cure this disease - for Linda, for the rest of the Ride Ataxia team, and for all of the others afflicted with this disease!

Enjoy our blog! Feel free to write to us any time. Check out the links in the right column below to read more about the disease and our adventures. And if nothing else, be sure to take the seven minutes to watch FARA's video - we couldn't say it better ourselves.

Friday, October 23, 2009

Ready for Ride Ataxia Philadelphia!

Well, maybe "ready" is a little strong. We're going though, ready or not. The bikes are loaded and we leave in the morning. Maybe we should have done some riding recently to get in shape for it, but how bad can it be? At least the weather sounds like it will be great. And the riders have raised over $40k now! Stay tuned!!!

1 comment:

  1. Look for information on 2010 Ride in Philly. If I book my air ticket soon it won't be to bad and it looks like a great Hotel (I forget the name, but it's not a chain and right next to an Outback!) Now finding a recumbent trike store was not 'REAL' hard, but they haven't got back to me if they will let me demo or even rent a trike (rayspedalpower.com)

    ReplyDelete