We're Linda and Andy Johnson, from Cazenovia, New York. What began as a blog about a bike ride has become a story about our ride through life, trying to overcome a disease that has had a huge impact on us and on many of our friends.

Our journey began in 2007, when Kyle Bryant originated the idea of Ride Ataxia - riding his three-wheeled cycle from San Diego to the annual National Ataxia Foundation meeting in Memphis. It took two months to get there, and in the process he raised $40,000 to fund Ataxia research and he raised awareness of the disease like no one has before. Well he rode to the annual meeting again in 2008 and we joined him! We left from Sacramento and arrived in Las Vegas two weeks and 650 miles later.

You see Linda also has Friedreich's Ataxia. This inherited disease causes the nerves of the body to deteriorate. Linda (and Kyle) can still walk at this point, but it's getting much more difficult. In addition, speech gets slurred, finger dexterity suffers, and other serious complications can develop as time goes on.

The good thing is that research is more promising than ever! Several drugs are going through trials at this time, with other significant research taking place as you read this. There has never been a better time to contribute to this research! Let's cure this disease - for Linda, for the rest of the Ride Ataxia team, and for all of the others afflicted with this disease!

Enjoy our blog! Feel free to write to us any time. Check out the links in the right column below to read more about the disease and our adventures. And if nothing else, be sure to take the seven minutes to watch FARA's video - we couldn't say it better ourselves.

Tuesday, November 17, 2009

CHOP Symposium

We attended the FA symposium at Children's Hospital of Philadelphia this past weekend.  It was a great event - very well done and informative.  Thanks to CHOP, FARA, and especially all of the doctors and organizers for a great job!  You can find videos of the presentations here.

3 comments:

  1. I anticipate seeking after graduate studies in frameworks science, thus I was going to go to a frameworks science symposium this Friday at Duke University since I figured this would be a decent systems administration opportunity. They have a publication session toward the evening (which I figure will be my fundamental systems administration opportunity), thus I am thinking about whether the notices will be exhibited by educators or by understudies.Write my Coursework

    ReplyDelete
  2. Thank you for sharing such a informative information with us. Keep on sharing the blog like this.

    PhD Thesis Writing Services, Dissertation Writing Services & Research Paper Writing Services

    ReplyDelete
  3. I am completely agreed with your decision. These are the most ever-present thought. I respect your effort for posting something like this here. I am delighted to know effectively accordingly keep continuing to share all the more close satisfying subjects.

    ReplyDelete